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  •   over 13 years ago

Scope of data for design?

I wanted to clarify: must the design be built ONLY off the data fields found on the CCD or can other data be included in the design?

  • 4 comments

  • Manager   •   over 13 years ago

    Hi Bryan,

    We'd like designs to only use the fields found in the CCD. This will allow us to ensure the design can be generated from what EMRs can produce.

    Best,
    Ryan

  •   •   over 13 years ago

    I am surprised by this approach. The CCD is a document that contains only a minimum data set needed for a provider to get a big picture view of a patient's current Health and Healthcare. In my opinion basing the design of future personal health record on such a limited range of data would place unnecessary and serious limitations on its functionality and utility .

    Several types of data not included in the CCD are necessary for a PHR to be useful, one of them is patient generated data (PGD). The utility of a PHR that does not include patient generated data would be severely limited when used for patient provider communication or shared decision making . Similarly, a PHR without PGD, would be very limited when patients wanted to use it to manage their own health .

    Several existing PHRs ( including the current My HealtheVet) already encompass data that is much broader than the set included in a CCD. I encourage the challenge organizers to reconsider this requirement for the design and to include not just PGD but all data types . I think this restriction will produce backward-looking PHRs that are data-centric ( like GoogleHealth) and geared toward information exchange between providers rather than PHRs that are forward looking and provide multiple ways for patients , caregivers and providers to use the data in the PHR. I believe that PHRs have the potential to improve healthcare but only if they include all the data needed to do so.

    Thanks,

    Bryan

  •   •   over 13 years ago

    Bryan,

    With employers giving out wearable sensors as part of company citizenship, HRAs required for all staff, and lots of other data collected outside the Land of Doctors (like at home, at work, at walk-in self-service health stations, online qualitative services, patient CDDSs, devices in your pocket, etc), it's almost impossible not to include data sources outside the CDA. Spot on.

  •   •   over 13 years ago

    I am tagging into the discussion above and wanted to concur that we can include the fields in the CCD plus illustrate others, as part of the vision for PHR 2.0. I concur with Bryan's comments that we would be going backwards only including the CCD fields.

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